Family Tree Brochure
Patients diagnosed with HPP can use this tool to help family members evaluate if they may have the condition as well.
Hypophosphatasia Education Brochure
Patients can use this tool to better understand their HPP diagnosis, learn about ALP, and find support.
Soft Bones
Soft Bones, Inc., The US Hypophosphatasia Foundation, provides information and a community to educate, empower, and connect people, families, and caregivers living with HPP.
WWW.SOFTBONES.COM
The Avalon Foundation
The Avalon Foundation provides emotional and mental health support to pediatric patients diagnosed with HPP and undergoing enzyme replacement therapy treatment.
HTTPS://KC4K.US/
Global Genes
Global Genes builds awareness, educates the global community, and provides critical connections and resources that equip advocates to become activists for their disease.
WWW.GLOBALGENES.ORG
The National Organization for Rare Disorders (NORD)
NORD provides education, advocacy, research, and patient services for people with rare diseases and other organizations that serve them.
WWW.RAREDISEASES.ORGSee how HPP may impact patients’ quality of life and daily activities, including their ability to work and learn
See important diagnostic criteria
